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Category: Cystic Fibrosis

Cystic Fibrosis

Great Strides Time

May 13, 2014 CarolLeave a comment

Twice a year, I raise money to help cure cystic fibrosis. Great Strides, a nationwide walk/run event is held in the spring, and it's that time. (The other event is a group cycle in the fall.) I'm really behind this year - the walk is Sunday, and I haven't done anything. And I won't be… Continue reading Great Strides Time

Cystic Fibrosis

Home

May 8, 2014 CarolLeave a comment

'Nuff said. (Stop taking my picture, Mom!)

Cystic Fibrosis

Breakfast

May 8, 2014May 8, 2014 CarolLeave a comment

Levi is having bacon with a side of bacon. Also tater tots and a chocolate milkshake. Gotta love the CF diet. :) We expect to be discharged after lunch sometime. Because of the way the infusions are scheduled, probably between 1 and 4. So one more lunch here, but we should be able to have… Continue reading Breakfast

Cystic Fibrosis

Rollin’ Along

May 7, 2014May 7, 2014 Carol1 Comment

We arrived safely and almost on time this morning, and went pretty much straight down to get the PICC inserted. I stayed in the room to talk to Levi through the procedure, and I had to rock the mask and hat. Levi found this hilarious. He was super brave, and behaved better, according to the… Continue reading Rollin’ Along

Cystic Fibrosis · Family · Life

Well, poop.

May 6, 2014May 6, 2014 CarolLeave a comment

In a somewhat-but-not-totally unexpected turn of events, Levi and I are headed to the hospital in the morning. He's got a cough that he just cannot get rid of. Despite throwing several meds at it for a few weeks, it got markedly worse yesterday. A cough itself is, of course, not the end of the… Continue reading Well, poop.

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