Today as I sit here and write, I'm okay. But I'm going to share something with you that I created when I was not okay. Last week, I was really upset. We ran into a little red tape with some of Levi's medications, and it looked like we were going to end up paying thousands… Continue reading Stuck In the Middle
Category: Cystic Fibrosis
2019 Calendars Available for Order
CALENDARS ARE READY TO SHIP! Calendars are $20 each, or 15% off ($17) with a discount code for anyone signed up with The Circus email list. All proceeds from the sale of 2019 #bethetree calendars support the Cystic Fibrosis Foundation. You can order one of two ways: online (shipping costs apply; payment immediately)ORDER ONLINE HEREIf you are a subscriber to… Continue reading 2019 Calendars Available for Order
Help Keep Levi Crazy!
It's that time again, folks. I will be riding in the CF Cycle for Life fundraiser next Saturday, September 15. If you want to skip all the fol-de-rol and go straight to donating, here's the link. Cystic fibrosis is a currently uncurable genetic disease. Improved treatments and medicines have lengthened the predicted lifespan of CF… Continue reading Help Keep Levi Crazy!
A Goodbye Too Soon
My friend’s daughter died yesterday. She was a college student. I only met her a few times, but she was beautiful and she was smart and she was full of the joy of life. She had cystic fibrosis. Her lungs stopped working. Lots of CF patients have double lung transplants. Some of them have the… Continue reading A Goodbye Too Soon
Don’t Wanna
I got this in the mail last week. I haven't opened it. I know what it is, and I'm being a brat. It's a nice thick packet. It's all the paperwork that I need to fill out in advance of Levi's annual appointment at the cystic fibrosis center. I've written about annual appointments before. Short version: We… Continue reading Don’t Wanna