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Category: Cystic Fibrosis

Cystic Fibrosis

Keep Levi Crazy

September 9, 2015 CarolLeave a comment

  It's that time again. Once a year, Paul and I complete a bike ride to raise money toward cystic fibrosis research. It's coming up again on Saturday, September 19. (We're, uh, getting a little bit of a late start.) Here are the donation links if you don't want to read the rest of my blather.… Continue reading Keep Levi Crazy

Cystic Fibrosis · Life

Until November 

August 12, 2015August 12, 2015 CarolLeave a comment

At least we hope so.   We had our annual visit at the CF Center this morning. This doesn't meant the only time in the year we visit - it means the one time every year that we see everybody on his multi-discipline team all in one appointment.  Sometimes it gets pretty long. (A couple… Continue reading Until November 

Cystic Fibrosis · Family · Life

On We Go

January 18, 2015 CarolLeave a comment

It's been a little crazy around here for the past week, not that that's such a huge change. As anyone who follows on Facebook knows, Levi was in the hospital to get a PICC line earlier this week. We only had to stay one night (yay!) and after a lineup of ridiculous things happening as… Continue reading On We Go

Cystic Fibrosis · Life

I am pathetic.

September 20, 2014September 20, 2014 Carol1 Comment

Also I do not have enough ice packs. I'm going to go out on a limb here and say that I haven't been riding enough this summer. But I went out on the trail and attacked it with the same speed and vigor as last year, though I didn't go quite 26 miles this time.… Continue reading I am pathetic.

Cystic Fibrosis

Brrrr!!!

August 22, 2014 CarolLeave a comment

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