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Category: Cystic Fibrosis

Cystic Fibrosis · Life · Parenting

Camp!

June 11, 2017June 11, 2017 Carol4 Comments

This is me, not freaking out. We just dropped Levi off for overnight camp. He'll be gone two nights. He has been apart from us overnight before, but it's always been one night, or he's stayed with my sister. This matters because if he's gone one night, we can manage all his treatments around being… Continue reading Camp!

Cystic Fibrosis · Family · Life

Cycle for Life

August 8, 2016August 8, 2016 Carol1 Comment

Well, it's that time again. (To donate to CF research without listening to my rambling, click here to support Carol or support Paul!) By "that time" I mean that Paul and I have registered for our annual Cycle for Life ride to raise money for cystic fibrosis research, but we've done absolutely nothing else. We've raised zero dollars… Continue reading Cycle for Life

Cystic Fibrosis · Family · Parenting

Seven Chapters In

July 13, 2016July 13, 2016 Carol1 Comment

I've been trying to read a book, and I'm having a lot of trouble getting through it. I'm seven chapters in after an entire month. The problem is not time. Maybe a little, but I'm finding time to read again these days. The problem isn't the writing. It's well done, and I am in fact attempting… Continue reading Seven Chapters In

Cystic Fibrosis · Family · Life · Parenting

You talkin’ to ME?

May 6, 2016May 7, 2016 CarolLeave a comment

The boys and I went to a benefit dinner last night. Paul stayed home. I told the boys he wasn't going with us, and Elias said, "Papa's in trooooooouble!" (Because why else would you be forced to stay home from an outing?) He seemed pretty happy about that, for some reason. I was just happy… Continue reading You talkin’ to ME?

Cystic Fibrosis · Family · Grief · Life · Parenting

You Can

March 23, 2016March 23, 2016 CarolLeave a comment

We were at the CF center this morning (regular checkup; all's well). Because of infection control stuff, we don't see much of other patients and families. Sometimes you see people you know in the hall and wave goofily from a safe distance. (You can occasionally determine by text that your friends are a couple of rooms… Continue reading You Can

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